End of life care

End of life is that period of time when a person is living with an advanced, progressive, life-limiting illness. One in five residents in South Eastern NSW is aged 65 years and older, and there is a higher than the state and national average rates for premature mortality within the region.

“Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering.” Source: World Health Organisation, Palliative Care, 2015.

End of life care is a key identified priority area for COORDINARE. Read our End of life care statement for more information.

Community Participation - Marathon Health / Multicultural Communities Council of Illawarra Inc (MCCI)

Promotion and focus on end of life care planning community engagement, throughout the South Eastern NSW region.

Consumer and Carer Relief at End of Life Project – Palliative Care NSW

The project focuses on developing volunteer based support in the southern region, and will include improving the availability and capacity of volunteers to offer home based support to consumers and their carers at end of life.

Palladium Care – Junction Medical Unit Trust

The aim of this project is to have all patients with a terminal condition or advancing age to have a clear management plan as they undertake the end of life journey.

Strengthening community based palliative and end of life care in Upper Lachlan Shire - The Health Care Centre - Round 1

The aim of the project is to improve current pathways for palliative and end of life care working closely with patients, their GPs and providers to ensure the patient receives multidisciplinary care that is stepped, timely and appropriate for the Upper Lachlan Shire region.

Strengthening community based palliative and end of life care in Upper Lachlan Shire - The Health Care Centre – Round 2

Staff will be upskilled to manage malignant wounds with patients that have a life limiting illness. In addition, monthly advanced care clinics will be implemented.

Caring safely for palliative patients in the last days of life - Batehaven Pharmacy

This project will strengthen existing links between primary and specialist palliative care providers, to support patient’s to be cared for at home or in an aged care facility through the implementation of the Caring Safely at Home resource.

A model to strengthen capacity and coordination of palliative and end-of-life care in Cooma residential aged care - Australian National University

The aim of the project is to strengthen integrated palliative and end of life care service capacity within Cooma residential aged care (RAC) via: strengthening the utilisation of advance care directives, enhancing primary care service models, and improving coordination and integration between providers of palliative and end of life care.

For more information on how commissioning works, click here.

COORDINARE commissioned development of a model of care to support the role of primary care providers in palliative and end of life care in South Eastern NSW.

This involved wide-ranging consultation with GPs, other care providers, and consumers from across our region to identify key issues and priorities. The need to strengthen advance care planning was identified as a priority by consumers to ensure discussions are held early enough to enable respect of each person’s wishes about their death.

The models of care were developed in recognition of the growing demand on palliative care services within the region, and the critical role that primary care providers can play in supporting palliative and end of life care.

The Illawarra Shoalhaven and Southern NSW models of care aim to:

  • support more consistent involvement of GPs in palliative and end of life care
  • strengthen the coordination and management of palliative and end of life care between GPs, the specialist palliative care service, primary health nurses and other care providers
  • improve outcomes for patients with palliative needs, their families and carers, including support for dying at preferred place of choice.

The guide also identifies opportunities to strengthen our health system and support local tailoring and implementation of the model of care. This is important if we want to drive improvements in palliative care for our communities.

Resources are available to support palliative and end of life care and learning and education. Key resources are presented below. A directory of palliative / end of life care services can be accessed through HealthPathways.

Helplines

Guides, handbooks and tools

Online training

  • COORDINARE learning: Palliative care online learning module covers early identification, advice and referrals, advance care planning and medication use (log in using your COORDINARE portal details).

Workplace training