End of life is that period of time when a person is living with an advanced, progressive, life-limiting illness. One in five residents in South Eastern NSW is aged 65 years and older, and there is a higher than the state and national average rates for premature mortality within the region.
“Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering.” Source: World Health Organisation, Palliative Care, 2015.
End of life care is a key identified priority area for COORDINARE. Read our End of life care statement for more information.
Community Participation - Marathon Health / Multicultural Communities Council of Illawarra Inc (MCCI)
Consumer and Carer Relief at End of Life Project – Palliative Care NSW
The project focuses on developing volunteer based support in the southern region, and will include improving the availability and capacity of volunteers to offer home based support to consumers and their carers at end of life. Visit the Palliative Care NSW website.
Palladium Care – Junction Medical Unit Trust
The aim of this project is to have all patients with a terminal condition or advancing age to have a clear management plan as they undertake the end of life journey.
Strengthening community based palliative and end of life care in Upper Lachlan Shire - The Health Care Centre
Staff will be upskilled to manage malignant wounds with patients that have a life limiting illness. In addition, monthly advanced care clinics will be implemented. Visit The Health Care Centre website here.
Caring safely for palliative patients in the last days of life - Batehaven Pharmacy
This project will strengthen existing links between primary and specialist palliative care providers, to support patient’s to be cared for at home or in an aged care facility through the implementation of the Caring Safely at Home resource. Visit the Batehaven Pharmacy website here.
A model to strengthen capacity and coordination of palliative and end-of-life care in Cooma residential aged care - Australian National University
The aim of the project is to strengthen integrated palliative and end of life care service capacity within Cooma residential aged care (RAC) via: strengthening the utilisation of advance care directives, enhancing primary care service models, and improving coordination and integration between providers of palliative and end of life care.
Community-based palliative and end of life program with Aboriginal communities
Waminda’s community-based palliative and end of life program with Aboriginal communities aims to improve coordinated palliative and end of life care for Aboriginal people living in the Shoalhaven. The aim is to increase capacity and awareness through training and credentialing three Aboriginal health workers in advanced palliative and end of life care; increasing health literacy; and providing a range of resources to Aboriginal communities and their health care workers.
For more information on how commissioning works, click here.
COORDINARE commissioned development of a model of care to support the role of primary care providers in palliative and end of life care in South Eastern NSW.
This involved wide-ranging consultation with GPs, other care providers, and consumers from across our region to identify key issues and priorities. The need to strengthen advance care planning was identified as a priority by consumers to ensure discussions are held early enough to enable respect of each person’s wishes about their death.
The models of care were developed in recognition of the growing demand on palliative care services within the region, and the critical role that primary care providers can play in supporting palliative and end of life care.
The guide also identifies opportunities to strengthen our health system and support local tailoring and implementation of the model of care. This is important if we want to drive improvements in palliative care for our communities.
Resources are available to support palliative and end of life care and learning and education. Key resources are presented below. A directory of palliative / end of life care services can be accessed through HealthPathways.
Guides, handbooks and tools
Program of Experience in the Palliative Approach (PEPA) provide funded palliative care workplace training opportunities (via clinical placements), workshops and support networks for GPs, nurses, allied health professionals, and others.
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